Yan the strong girl!

I'm really attempting to get some better lifestyle habits, including some more exercise. When I've been successful losing weight in the past (okay, about 10 years ago) I was doing heavy duty cardio and strength training. So I decided that I wanted to get some small weights for home. I was hoping to find some used ones, and I did find a little pair (3.5 lbs) at the thrift store. I brought them home and showed Yan. I showed her how to lift them up and do reps up to 10. She's been working on her counting and decided to try on her own. She lifted them up, but by two she was struggling so this is how the counting went: one, two, three, TEN! She promptly set them down. I love her style!

Show Hope!

"Show Hope", formerly "Shoahannah's Hope" is a wonderful organization that was started by the Chapman family to reach out to orphans and families adopting. As most of you know the Chapman's have gone through a rough year after losing their daughter, Maria, last year. God has used this horrific event for good by bringing in funds to start a new home in China for children with special needs. We were able to go to the open house (here, not in China...but boy would that be fun!) for Show Hope last night. Fox news happened to be there and we were in the news story (at the start and end). You can see it here:

http://www.fox17.com/newsroom/top_stories/wztv_vid_679.shtml

Yan loved seeing herself on TV and was shouting and pointing! :-)

A Fabulous Party!

It's been busy around the Cullimore house lately! This weekend we went to a birthday party for our good friend, Zara. Zara's uncle used to own a horse and since she was having a "horse party" he decided to surprise her and bring the horse to the party for rides and "horse talk". To say that this trumps any party that I can throw from this time on is an understatement. Yan did not want to leave the horse's side. She talked/and signed about how she rode the horse for the rest of the day. She even showed Elmo how to ride a horse today. :-) So here are some horse pics...enjoy!

Yan in Pictures!!

I don't have tons of time right now (dinner is on the stove), but wanted to take a moment to update the blog. Recently my friend, Amber, (which I'm not seeing her blog on my roll and I don't know why...perhaps I haven't updated it in a year or so :-O) told me about a wonderful program called "The Littlest Heroes Project".

http://www.littlestheroesproject.org/Littlest_Heroes_Project/Home.html

It matches photographers with families of children with special needs. The photographers donate their time and talents to do a photo shoot of the child for free. They then give you all the pics on CD-ROM so that you can print off whatever you want. This is a huge blessing as it provides memories that are typically very expensive.

I signed Yan up and she was approved and matched with a wonderful photographer, Stephanie, with "Bella Flora Photography". Stephanie met us at a park a couple of weeks ago and took pictures galore. She took several hundred Yan Yan photos! This week she put a sneak peak up on her blog. Check it out!

http://www.bellafloraphotography.com/blog/

When we arrived at the park to take the photos Stephanie surprised us with a beautiful, custom made pettiskirt set. It is GORGEOUS! You could tell the minute Yan put it on she felt like a princess. It turns out it was made and donated by a very talented woman. Here is her on-line blog/store.

http://www.missthingsboutique.blogspot.com/

Thank you both ladies! Thank you "Littlest Heroes"!! We are so blessed to have this photos taken!

Jenn

A Yan Update!

I've not done well keeping up with things again, but thought I would at least post a little update. Things have been busy. I feel like we go through spurts when everything is great, medically speaking and then we hit some rough patches...I guess this has been a rough patch lately.

A couple weeks ago we went to the Down Syndrome Clinic for Yan's yearly tests. As some of you know Yan was born with Congenital Heart Disease, as a result of Down Syndrome. She had two large holes in her heart, in her upper and lower chamber. Her mitral valve was also damaged. Yan remained in the hospital in Hong Kong after her birth. At two months of age she had open heart surgery. The holes were repaired well, and the valve was too...however, as she grows her valve has been loosening up.

Ideally the doctors would love for the valve to just stay tight, but that doesn't appear to be happening. The next best thing would be to repair it (requiring open heart surgery again) when she is 13-15 years old, and almost grown...but they don't think that it will wait that long either. When she had her echo, they saw a lot of mitral valve regurgitation. The Cardiologist feels that her heart might begin enlarging in the next few months and that they will have to start some medication...and see how long they can prolong things without the surgery. The worrisome part is, if they have to do the heart surgery soon and the valve would not be in good condition to fix it, they would put in a titanium valve. However, artificial valves only last about 5 years, so they would have to redo the surgery every 5 years. :-(

My concerns...IT'S MY BABY!! I don't want her to have open heart surgery. My heart still goes back to thinking about her as a baby, without a mommy. I know that some of her sensory, security and fear issues relate to being in the hospital for so long as an infant. She is PETRIFIED of anything medical...and the thought of her going through all that just frightens me. I'm afraid they would have to sedate both of us for the entire hospital stay. I also really want her to grow more first...she is only 40 lbs now, and just doesn't have much reserve.

On top of all of that the doctor's are testing for Celiac disease and they also think she's having Sleep Apnea. I'll be honest, I know that other people are dealing with so much more...but sometimes it just seems very overwhelming and lonely. I know that God knows everything about Yan, I know that he knit her together in her mother's womb, I know that I know, that I know...that He knows...I just have to let go and let Him do it.

Bow Breakthrough...my thoughts!

Well, first things first, I have to show some pics of what Miss Yan has been up to lately. Can we say, "BUSY"? She is learning so much daily, but really she thinks that she's about 15 years old now and can do everything HERSELF! She purposefully tries to get up before me so that she can try to "cook". Ah, the stories I could tell you. Enjoy the pics of her "Eggs" morning. She also enjoyed making beds up for all the bottles of water.

She's getting much better at hiding things as well. Tonight I noticed that she had worn my slippers out of the bedroom while I was doing the laundry. I looked around for them and could not find them in any of the usual spots. I finally said, "Yan, my slippers are missing, do you know where they are?" She replied with a proud, "YES". I followed her to the refridgerator...sure enough on the second shelf with the food. I bursted out laughing. Oh my, what can you do? :-)

We had a bow breakthrough yesterday. I used to try to get bows in her hair all the time, but she would immediately take them right out. Yesterday we were going to a friends violin recital and I decided I would try again...she wore them all afternoon! Wooohooo!!! She liked to bop her head up and down and feel the bow shake. I thought I would post a few pics!

I'm still in the process of building up my caseload for work. I'll be honest, it's really hard to go from being a stay-at-home mom to working outside of home again. I love being with Yan. I love teaching her and feeling like I'm the one with the most influence over her heart. I just wish I could pay my bills and stay home with her! I'm also feeling a heavy heart lately wanting to adopt again. I just have a burden for so many children like Yan that are not given a chance. I was able to talk to my friend Amy the other day, they are in the process of adopting two more children with Down Syndrome (see Luke and Irena on my side bar for ways that you can help). These children age out at 4...they are put in an institution and are not cared for well, many dying of starvation. My heart wants to jump on a plane and bring as many home as possible. But I have no money, I don't have enough support around me yet to make that commitment again.

Sometimes I just have to wonder why? Why do people who have the heart to do things, not have the means. Why are some people who are so selfish and into materialistic things given so many riches to blow on toys for themselves? Where is the justice? I know, I'm whining ...but it is my blog. :-) Anyways, that's where my head and heart are today...please just say a prayer for all those children out there. Jenn

Good Friday!

Well I was so nicely reminded by a friend :-) that I had not updated in a very long time...so here goes, at least a brief snip-it! First and foremost, thanks for your prayers for Grace! She is battling some fluid around her heart right now, but has otherwise been a total rock star! God is good!

We've just been busy little bees. I've started a new job part-time and Yan has continued to keep me hopping! She is growing up so quickly that it makes me sad sometimes. She is SO independent...trying new things every day! She continues to love dress-up as you'll see in the pictures!

We are going to an egg hunt with our Chinese Adoption Group tomorrow...I will take pictures.

Remember the reason for this fabulous Easter...Jesus Christ came to earth sinless, died on a cross and rose again...all for YOU...all so that YOU can live forever!!! That is the best gift imaginable! Make sure you've accepted it!!!

Jenn